This week, I woke up to some big excitement in the world of communication rights. It was surrounding an academic study that had just been published: Eye-tracking reveals agency in assisted autistic communication (Jaswal, Wayne, & Golino).
The excitement might not be immediately obvious to anyone unfamiliar with the subject, so I wanted to jump on the chance to break it down and let fellow reliably-speaking autistics join in the excitement.
The study comes on the heels of years of concerted efforts to downplay the potential for authentic communication with new teaching methods. Jaswal et al. describe the situation, with reference to the message-passing experiments that were popular with facilitated communication.
Studies with nonspeaking autistic people who type while an assistant supports their hand or arm have shown that the text they compose can be influenced by the assistant: If the typist and the assistant are shown different images, for example, the typist rarely types the name of the image they were shown and may instead type the name of the image the assistant was shown. The results of these experimental “message passing” tests have led many scientists to conclude that anyone who appears to communicate with assistance […] is actually responding to subtle cues from the assistant.
The crux follows, though:
Yet behavioural scientists have shown repeatedly that tests that fail to take into account a group’s unique developmental history can underestimate or misrepresent the abilities of members of that group.”
Autistic advocates know many examples of this! As a prominent example, in 1985, Simon Baron-Cohen et. al. published a fairly famous study, “Does the autistic child have a “theory of mind?” The procedure they used is sometimes called the “false belief test.”
In short, it involves a narrative played out between two dolls (Sally and Anne), wherein the participant must correctly identify that Anne will look for a marble where she thought it was, not where Sally placed it when she wasn’t looking; presumably indicating that one understands what Anne is thinking.
“Theory of mind” has gone through various changes since that time, and particularly because autistic people have refuted the theory very soundly. In 2019, Gernsbacher and Yergeau published a review of studies of theory of mind in autistic people, “Empirical Failures of the Claim That Autistic People Lack a Theory of Mind,” which is incredibly extensive.
Back to communication, though: researchers have not yet come up with a successful controlled message-passing experiment, and there have been numerous hypotheses laid out for why that could be, particularly when people who have learned to type or spell to communicate regularly pass information unknown to their support people.
Because of this, teaching methods that rely on both physical assistance (like facilitated communication, or FC) as well as methods which rely more on non-physical prompts (RPM, S2C) have been plagued by Skeptics claiming that even those who have achieved independent typing or spelling are somehow being “cued” by their support person.
Using eye-tracking technology was an excellent choice in terms of examining the process of spelling as communication. It provides the quantitative data that skeptics demand while examining communicative agency in a real world setting. Many of the same skeptics have suggested eye-gaze communication devices as an alternative to letterboards, so it is clear that eye-tracking is a trusted technology.
(Eye-gaze technology is theoretically a possibility for nonspeakers, though there are certainly a lot of barriers; it may not financially plausible; it might not be a sensory possibility; a person would have to be trained to use it in the same way that spellers need to train their motor functioning to point at letters; and finally, expensive technology and the unpredictable movements of an apraxic autistic person just might not be a good mix.)
In this study, the researchers took nine nonspeaking autistic participants and asked them open-ended questions about a piece of text. They used head-mounted technology to track where the participants’ eyes were looking as they responded to the questions (by pointing to letters to spell their answers).
“The accuracy, speed, timing, and visual fixation patterns reported here suggest that participants were not simply looking at and pointing to letters that the assistant holding the letterboard cued them to. Instead, our data […] suggest that participants actively generated their own text, fixating and pointing to letters that they selected themselves.”
This is why the study is a big deal in the nonspeaking world. It provides empirical evidence of communicative agency; that the “blanket dismissal” of assisted communication (particularly by organizations such as the American Speech-Language-Hearing Association) is “unwarranted” … the same thing communication rights activists have been saying for years now.
It is only one step, but it’s a big step. I’ve checked around, and I know that dedicated skeptics are already trying to figure out how to discredit the results, but so far, none of them have directly addressed the data collected.
All we have to do now is wait for other studies to replicate the findings. We live in exciting times!
I make it my full-time job to improve my understanding of myself and others, question unchallenged perceptions of normality, and identify value in what I have to offer.
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10 Responses
This research underscores the importance of understanding and respecting diverse communication methods. Can not wait to see how this shapes future discourse on communication rights.
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This new study on communication rights is definitely a game-changing. I liked research like Eye-tracking reveals agency in assisted autistic communication finally providing empirical evidence to support what many autistic advocates have been saying for years. The way eye-tracking technology was used to prove that nonspeaking autistic individuals are generating their own thoughts and communication, independent of assistance, is huge for the community. It’s about time we have some solid data to push back against the skeptics. The fact that so many teaching methods, like facilitated communication and spelling-to-communicate (S2C), have faced such criticism makes this breakthrough even more important. When I was working on paper with similar subject and I found paperial reviews to be a really helpful. By showing that participants actively selected letters themselves, this study reinforces the legitimacy of these communication tools, which have often been dismissed without proper understanding. It’s really a win for communication rights activists who have been fighting for recognition and validation of these methods for years.
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This is an incredibly insightful article—thank you for sharing! It’s exciting to see how technology like eye-tracking is being used to validate the communicative agency of nonspeaking autistic individuals. It reminds me a bit of how Block Blast and other puzzle-based games also rely on precision, intention, and focus—something that’s hard to fake. Just as a player’s strategy in Block Blast reveals their problem-solving ability, eye-tracking data is beginning to clearly show the intentionality behind assisted communication. It’s a game-changer for how we understand and respect diverse methods of expression.
Such an important study—finally real data showing agency in assisted communication! Like monopoly go events today, there’s often more strategy and intention than people realize. It’s time we stop dismissing what we don’t fully understand.
This research is an important breakthrough for recognizing real communicative agency in nonspeaking autistic individuals. It provides strong evidence that challenges old skepticism and supports more inclusive teaching methods. It’s inspiring to see science evolving to better understand and respect these communication forms. If you enjoy games that test strategy and quick thinking, you might like hexagon io cool math games. This multiplayer game challenges you to expand your territory on a giant hexagon map while defending against other players trying to cut off your path. It’s a perfect mix of tactical planning and fast reflexes, offering a fun, competitive experience. If you want a fresh and engaging game to relax with, give Hexagon.io a try, you might find it just as rewarding as this new research is for communication rights!